Online Resources

As awareness of Fabry disease grows, so does the number of groups and websites that support the Fabry community and others living with genetic disorders.

Fabry specific sites in the United States

Fabry Support and Information Group
www.fabry.org

National Fabry Disease Foundation (NFDF)
www.fabrydisease.org

National Kidney Foundation
www.kidney.org

New England Fabry Support Group
www.nefsg.org

Lysosomal storage/genectic/rare disease sites in the United States

Genetic Alliance
www.geneticalliance.org

National Institute of Neurological Disorders and Stroke (NINDS) National Institutes of Health
www.ninds.nih.gov

National Organization for Rare Disorders (NORD)
www.rarediseases.org