Online Resources

As awareness of Fabry disease grows, so does the number of groups and websites that support the Fabry community and others living with genetic disorders.

Fabry specific sites in the United States

Fabry Support and Information Group

National Fabry Disease Foundation (NFDF)

National Kidney Foundation

New England Fabry Support Group

Lysosomal storage/genectic/rare disease sites in the United States

Genetic Alliance

National Institute of Neurological Disorders and Stroke (NINDS) National Institutes of Health

National Organization for Rare Disorders (NORD)