Talking with Your Doctor

To be an active participant in your own care, it is important to talk with your doctor(s) openly and honestly. If you or a loved one has Fabry disease, you may be seeing more than one specialist. It may be helpful to let your doctor know of other specialists you may be seeing.

During each medical visit, be sure to ask any questions you may have concerning your disease, its symptoms, and treatment options. You may wish to keep a list of questions you want to ask. Being prepared can help you to get the most out of your doctor visits.

Questions about Fabry disease

If someone in your family has been diagnosed with Fabry disease, or if you have other reasons to suspect that you or your child might have the disease, talk to your doctor.

For yourself

View the questions to ask your doctor if you have experienced symptoms of Fabry disease.

For your child

View the questions to ask your doctor if your child has experienced symptoms of Fabry disease.