Online Resources

Clicking on the links below will take you to other sites with information about Fabry disease or related topics. Many of the websites listed offer support groups, newsletters, and clinical trial updates, including recruitment announcements for upcoming trials. These websites and their contents are maintained by the organizations listed below. Genzyme does not endorse these sites nor is it responsible for the content or maintenance of these sites.

Fabry Support and Information Group
108 NE 2nd Street, Suite C
P.O. Box 510
Concordia, MO 64020
Phone: (660) 463-1355

Genetic Alliance
4301 Connecticut Ave. NW
Suite 404
Washington, DC 20008-2369
Phone: (202) 966-5557

National Fabry Disease Foundation (NFDF)
4301 Connecticut Ave. N.W.
Suite 404
Washington, DC 20008-2369
Phone: (800)-651-9131

National Institutes of Health Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Phone: (800) 352-9424

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100

Canadian Organization for Rare Disorders (CORD)
151 Bloor Street West, Suite 600
Toronto, Ontario M5S 1S4
Phone: (416) 969-7464